Wuhu my arse

Twice now I have gotten lost on this island, and a planned half hour bike ride becomes an hour.

Dear Wii developers, the tiny circle of map you show me sucks. I need a better idea of which way to go. Like to be able to see THIS type of map and where I am and which way I'm headed. A guided course would be less frustrating, and a nice alternative to the "hunt the flags" game.

The funniest part is if you throw yourself off a cliff or into water in despair, you instantly get placed back by the last flag you achieved. It might be halfway back around that damn volcano...but there you'll be, with your son snickering and your daughter saying "are you DONE yet?"

Then, even having your glasses off, you won't be able still to make believe you really ARE on that island.

Will winter ever end?

Taken on my way to work today. Original photo by Hipstamatic and then I modified it with PhotoStudio -both on my iPhone.

Morning shot

Sometimes I take photos on the way to work... I did postprocess this, but only to try to make it come close to how beautifully gold the sky was while I drove in today. By the way, it was MINUS SIX DEGREES. Dear winter, please GO AWAY.

Loving my job

Today my assignment was to test an iPhone/ iPad application. Awesome. And no, it wasn't that bogus confession app. WTF ever.

I also played solitaire for a while and wished I had a way to install Angry Birds. But our IT group wisely never told us the security code for the wireless router in our test lab. And this snazzy little snakeskin clad number does NOT know there is any wifi, no way, no how. :::sob:::

You can see the reflection of the skylight over my desk (the other day snow was blowing in via some wayward seam and filtering down ON MY DESK but I was out, getting my girls squished in the name of good health. Yay me!!! Six months since my cancer treatments finished!!!)

Mulling over

It's been six months since I finished treatments. I am feeling more ready than ever to move forward and spring clean, get back to photography and scrapping (for something BESIDES yearbook) and running (dear mother nature, seriously, warm it up, bitch....)

Talked for an hour with my sister about her baby, due this spring, and her baby shower and all sorts of other fun plans around that.

I need to wake up and get myself to work... Gotta stop staying up late to watch Top Chef and falling asleep mid episode! Couch sleep is baaaaaad.


Dear FX Studio, I love love love your iPhone app but it is not saving images right. I will eagerly await the next download. Smooches, Carly

Durn

I hate it when my photo edits don't save... Good thing I'm not a professional blogger...

On your mark

Made with FX Photo Studio

These are markers used for mammograms done post-surgery. They are placed on scars, and then the fun begins. I knew it would hurt to have my girls crushed between two acrylic plates...because my scars still ACHE some days.

I was doing ok with the pending appointment until last night when I started bitching at EVERYONE around me for laundry sins and other meaningless stuff. I was scared. 

Scared to go back to the place where I went 13 months ago for what I thought was a routine repeat mammogram. Scared of finding myself at square one again in a very unpleasant game. 

I called a friend on the way to the appointment. My too- far- away friend was there for me to call (sobbing) after every test I had in December '09 and was there again to listen today while I babbled about various nothings and got myself from point A to B. I couldn't do days like today without my friends. 

Another friend met me for lunch and then sat in the waiting room while I had my 'photo shoot'....

The technician was as gentle as possible. But eff me, it really hurt. She had to do at least five angles on each side and each one hurt so much... But just for a few seconds. The crush was all I could think about...   The instruction 'stop breathing' was almost unnecessary.  But the mote you compress, the better the images.

She asked the radiologist to review my pictures before I left, per normal procedures, and hugged me after telling me they looked good. 

In six months I get to do it all again. Um, yay?

Fun and games

So I saw a game somewhere, either in Rachel Ray's magazine or in spam (wait, same thing) and it was a sort of super bowl commercial bingo.

Couldn't find it later when I wanted it so I made up my own. A hit for the kids- glued to commercial (candy bar then points for commercial with the elements combining in your square...most points at end of game got an iTunes gift card. ... It was a shoe in for kid w movie/ famous actor - that was dumb of me. But luck for him, since they didnt see the categories while writing their names thanks to two whole sheets of paper. And cats? WTF was I thinking? I wrote down some of the categories I missed or that sucked, to improve it next year (I had sized it based on how many kids were coming and this isn't the final version... I took electronics out and that was bad...)

Lastly, a few comments. No cheerleaders, and two teenage boys at mi casa. Hahahaha especially no DALLAS cheerleaders. Kind of a shame really.

Black eyed peas- love /hate (I like their older stuff better)but why does NFL always totally suck their sound quality for game show? Geeez really.

Xtina is an alto and that glee chick I can't stand is clearly a soprano. Get over your ego and trade songs. It would have been so much better.

We skyped most of the game with my cousins in Tennessee and it was so awesome because the boys (mine, hers) had a giant bet and they are merciless gloaters.

Ugh. I'm parched and I gotta go to work. (hey, I got a raise! They like me!!! Yahoo!)

Stupor bowl p1

Raise your hand if you are/will be late to work today...

I made this awesome cheese fondue (yep, beer in it) and confirmed that people will NOT voluntarily eat veggies even slathered in cheese. Most of the cheese and bread are gone, but half the veggies- hmmmm. On the plus side I know what I'm having for dinner!!

I baked a second pan of brownies at the last minute and it went totally weird. Didn't set right at all; then we tried to rebake and the middle puffed up while the outer edges burned. Fumble!! To the trash.

In which I stew the groundhog

I have caught myself several times in the past day or two, making several threats against the person (?) of the Groundhog. You know, THAT ONE that should be telling us it will be an early spring. Except, don'tcha know, it's CANCELLED. This winter is so bad the groundhog isn't coming, kids.

Are we having fun yet? I am hoping that the coldest winter will yield the most beautiful spring. I can't help it. It's how my mind works now. If we have to go through all of this crap, may we each find something wonderful comes of it.

I worked from home today, bully be damned. If need be, I will point out to him that he has never -no, not even once, signed my time sheet, and there's a darn good reason for that. My boss scared me a little today when she set up a recurring meeting, the first of which is 9 am tomorrow. We will be in the thick of the second wave of this whomping storm by then... so I nervously sent her an instant message: "Um, tomorrow? When it's all blizzardy?" to which she replied "Yup."

Oy. So I thought about braces and other good ways (not) to spend a few grand that I may not have if I lose this jobaroooni and I replied "I will do my best to be there on time." I think then she realized I was praying to Saint Bernard and his rescue dogs not to have to drive tomorrow. "Oh, no, I'll probably reschedule THAT one." (thank you thank you thank you)

Today I was scanning baby pictures for the yearbook after I worked. I was mulling over all of those tiny babies, and knowing the teenagers they have become, and knowing how they are struggling this year to get along with each other and stay on the right path. So, it was bittersweet.

I did come up with a solution for my Sunday blues, however. I informed my older child that she needs to plan on coming HOME on at least SOME Sundays for sports, food, and laundry. Bring a friend, or two. I don't really care what ball the people on tv are knocking about. She needs to get home on a regular basis and let me feed her and wash her 1000 outfits to ease me through giving her up to the big wide world. (Seriously. How do my children get SO MANY CLOTHES DIRTY????)

Sunday art sadness

I have been tossing and turning for a while now and thought I would try to write it out of my system. I have a sad lonely feeling I can't shake on this dark winter morning. (photo from my walk last night. A balmy 32 degrees.)

I am going to our school's catholic schools week mass today. I have been going to these every year for about 12 years, between my two kids, and this is the last one.

A year ago, I couldn't go. I was up early and ( one of my surgical incisions opened and blood everywhere and yuck and ) I ended up in an ambulance to the ER where I was then admitted to chill with some iv antibiotics for a day or two.

So while I am happy I at least get to BE THERE I am sad, last one, omg kidsaregettingsobig. When my son leaves the school in June, (lord this is so petty but) I will effectively lose a bunch of friends that I just won't see anymore because we will all be busy with crazy teenagers.

When my daughter graduated, I tried to put together a monthly 'moms and or dads get together at someone's house night' and it never got off the ground.

So I am trying to work through my OWN feelings of leaving a school I have been heavily involved in (and the love/hate of volunteering is still going strong) and trying to help my kid get through a year that I am finding has been one where a culture of bullying has emerged, which the faculty is now trying to stamp out.

And it's only going to get harder from here.

In five years (not even) both of my kids will be IN COLLEGE. Possibly away from home, but I kind of doubt that since I don't even know how I'm going to pay for it in the first place, even around here, much less far away.

And my sister is going to have a baby, in the spring. In another city, an eight hour drive away. Which means I will not be the third person to kiss that new darling face. Or the fourth, fifth... I don't even think I'll be in the first ten.

I know the antidote to these feelings is to stop dreading the future and make fun plans to look forward to.

Yet I can't help wanting time to slow down or stop because I feel like it is rushing to a point where I am going to be very alone. My mother dropped a remark about how when you get older you really don't go anywhere and I'm terrified that I will slide into her state (is it agoraphobia or just later life?)

Funk. I hate this funk.

A change

In a departure from my usual morning shots, here's one late the other night. I was discouraged about a half finished disagreement, and the temperature was a mini heat wave of about 20* - warm if you consider the -17 we hit recently. Blah.

So I bundled up and walked around my favorite park alone. It let me mull a few things over.

One of the Droids has become very spiteful to me and it was pretty bad Tuesday. Sarcastic remarks all day long, with a cheap shot just before he left for the day. I've worked from home a few times because of snow lately. If my kids have a two hour delay I stay home to make sure they actually get the bus. And the other day I felt lousy and so Ii decided to WFH again. So Wednesday the alpha male Droid who tries to boss everyone around said to me "will you be in tomorrow?" Caught off guard, I nodded. "oh, two days in a row, huh ?" Dick.

It's crap like that which makes me want to leave. I want my own cubicle again so I don't feel like I'm being watched. Add the other guy's ranting and raving about random news things or his imagined slights and persecution at the hands of our manager. I really like guy #3 the best because he is quietly oblivious and doesn't bug me. But I got a raise, don't know how much yet. Yay me! One crazy year as a temp under my belt. Now what?

Am I boring you?

I'm stuck in traffic. Sorry.

Brrrr

Don't leave stuff in the car in the wintertime!!! I tend to do this far too often.

Well

Apparently photos don't bend, but cd cases snap in half. Bubble wrap envelope, anyone?? I think the ups guy laughed as he walked away from my door.

Morning reflection

This is actually the roof of my car, not a quiet pond. (On the phone, you can't tell. Just humor me.) There's a pink moon in the western sky that I was not quite as successful at capturing.
Yesterday was the one year anniversary of my first surgery. So right about now I couldn't move either arm because of the double lymph node biopsies. Fun fun fun. I don't think I'll spend every day looking back at last year's adventures though. What good would that be?

Dear blog

Blog, I'm sorry I am not around as much. Gotta get the yearbook done. Yesterday I had 12 teenage girls invade my house and while they did thing I hate like cut kids out of photos because they're 'the wrong grade' (put them in the effing yearbook!!!!) they also did things I hate like "tons of work getting 20 pages done".

Above is a photo that will show you what I was working with... Enough sense to wear boots on a single- digit temp day... But not to close my front door. Ugh. Or, Ugg of course!

Dear nephew

You are so darn cute. That is all.

Wait. Also, I will buy you a super cool camera someday. By then it will be something that takes a 3d image all around you. And when you look at pictures it will really be just like being there. And not in that tortured 'slide show in the church fellowship hall' sort of way. If you don't know what that means, go ask someone old.

In an interesting development, my nephew, who was discuss with albinism, seems to be getting more pigment in his eyes. Can you outgrow that? I was very confused by my sister in law's explanation. His eyes are still lousy as far as vision quality - he will head butt his sister all the time (by accident) trying to see the screen when we 'bake a cake' on my iPhone. He loves that app. And I love him.

I told you so

So one day last summer this happened. (A little boy I know, asking why I was baldo). At the time I said to him, "When I see you at a basketball game, I'll have my hair back."

I walked into a CYO game yesterday, and there he was with his dad, at the admission table right in front of me. I said to his dad, "I wonder if he remembers seeing me bald last summer."

He called Noah back, and I bent down and said "Come here!" and he gave me the "you're a stranger trying to steal me aren't you?" face and so his dad had to reassure him, but then he came over to us.

I said, "Remember at Ritchie's baseball game, you saw the lady with no hair?" And I saw an instant flicker of recognition pass over his face. Ding, ding, that rings a bell - he nodded.

"That was me!" The eyes got very large then, in disbelief.

"I TOLD YOU my hair would come back; look at it!" He laughed at me and said "wow!" His father and I cracked up. Good trick, scary lady. (Please don't ask me to do it again, kid.)

I really did it more for me, of course, and I knew that, and I think his kind father also knew that. The little boy is only about three or four, and I'm sure he would have sailed through life just fine without the Return of The No Longer Bald Chick.

Dear Dunkin

Why no love for the tea drinkers? No extra large option? I mean, come on, you could get $2-3 for a teabag that costs about a quarter.

Getting up too early on a freezing cold day makes me cranky. I need hot tea! Plenty of it.

Sleepy Smooches,
Carly

Ta Douleur

So, dear blog, today instead of a photo I'm giving you a song.

Well, wait... here is a photo of Piper Jane, who is so cute I can't even stand it. You can read about her at Reagan's blog: http://www.reagansblob.com/ and yes that's a B in that URL there. Blob!

Reagan also has a blog called Hairdresser On Fire, http://www.hdofblog.com/ and (now I'm FINALLY GETTING TO THE POINT) that is where I heard this song which is PERMANENTLY stuck in my brain.

Ta Douleur - Camille

I don't know what it means... I'm going to have to Google it a bit more. But I'm doubly impressed that Reagan could do her video and not be dancing the whole time. OK, I know, it was edited in later. Just work with me ;-) Go find the song in iTunes. I dare ya.

It's over

This is the last of the Christmas raisin bread my mom makes every year. What next, now will I run out of cookies soon, too??

Sunday art - balls

Another shot from my trip to Manhattan last month. "Balls!" is one of my favorite PG-13 expresisons because Suzy always answers "If I had 'em, I'd be King, says the Queen." Then that makes me laugh and I get over whatever I was annoyed about.

Balls, it's time to take down the holiday decorations. That's what we'll be doing this afternoon. I do, however, have a large snowman collection that comes out right about now to get me through my funk of "all that work and Christmas just SHOT BY"....

Happy new year

My new year's resolutions are rather free flowing. I want to catch up on things that fell behind last year, and focus on things like my health and the commitments I have made.

Today I decided I will just try to catch up on one small thing each day. I started by editing and uploading photos from my recent trip to Manhattan - I had promised one of the other moms that I spent most of the day with that I would put photos on Snapfish. That was three weeks ago! Ooops. In my own defense, I did have a brief outage of flu+sinus infection, and then I had to catch up on my Christmas preparations.

Most of the pictures are of our children but I had a little bit of fun with these. The string of lights is right near a HUGE pile of holiday ornaments, and both are near Rockefeller center, as is Radio City Music Hall.

The best part

...of a party in the neighborhood is having each neighbor hug you and say how happy they are to see (me) doing so well, andofcourse the other best part would be not thinking about Certain Things for an entire evening, except for occasional mentions of my fond hope that 2010 fades swiftly in my rear view mirror.

Happy new year, y'all.

Yeah, THAT mess

Someone? Shovel this off? Please? But don't touch those cookies.

A fine mess

It's been a while since I worked at my art table, what with birthdays in our family being stacked in September, October, and November.

If you're familiar with Tim Holtz, who designs for Ranger (a company that sells stamps, inks and other products), this is a variation on his 12 tags of Christmas project. The trees are wood but the main tag is made of Tim's "grunge paper" - it doesn't tear, and it takes things like acrylic or crackle paint, ink, and mod podge glue and doesn't just crumble.

Now I have to clean up the mess...

Tag!

Well it's Christmas afternoon, and I must say it's weird not to have 500 things to do.

I'm working at my art table. These need a lot more but I'm having fun. Except I really don't think I stirred my crackle paint enough. Oopsie.

Merry Christmas

I have been busy, but it's manageable chaos right now. My gifts are wrapped, cookies are baked, and I braved the supermarket for what I need for brunch on Saturday.

I have the next five days off and there will be lots of family, food, and basketball. And at least a little wine.

Yesterday was the one year anniversary of the phone call from the doctor who had done my first biopsy. Not happy memories. After googling "invasive lobular carcinoma" that day, I read a phrase something like "x percent of patients live five years" and sobbed. It's not long enough. I wouldn't be able to see my kids graduate from college or get married or have THEIR kids, if that's all I had. So I crumbled, alone in my house. A whole state away, my sister woke from a sound sleep after her night shift and called me.

Last Christmas eve I cried while I sang at mass. I was frightened and I could see people I know holding their new grandson down below me in the pews, which broke my heart. I was trying to keep anyone from noticing me because I didn't want to ruin anyone else's holiday, which seems silly but how do you answer "merry Christmas" with "I have cancer" ?

While I was sick my children grew taller but also much more independent. Cooking. Arranging rides to their sports and other activities. So much has changed over the past year, and it's almost like some of it happened to somebody else. I try to shake the ghosts of last December off, and I do pretty well, except for at lunchtime yesterday when I was telling a couple of people I eat with now about the whole phone call and the days that followed.

I'm kind of exhausted right now, so I am going to finish up this post, but let me assure you that I will be SO happy to hang a new calendar on the wall.

C is for

This picture only shows half of what we accomplished; it doesn't show the gluten free cookie I invented for my brother in law based on the recipe he USED to expect every year at our tree trimming party. We call them Scotchies, and they have butterscotch and white chips, pecans, and...scotch whiskey. The GFree bisquick mix has some potential- I need to tweak the recipe though. It was a little bit too far off in consistency but still tasty. It's the least I could do for one of the best brother in laws around (he got me in with the awesome medical team that managed my surgery/ chemo/ rad.)

The photo also doesn't show the two kinds of fudge I made (chocolate and a chocolate/ white combo with candy cane bits mixed in) or the almond flavored dough that is still sitting in my fridge waiting for time in the oven.

It also doesn't show the hours I spent *not* thinking about that "other c-word", cancer. Like, hours and hours - (easily the longest stretch in a year) of pure normal. I was delightfully distracted, and just baking and being in the moment with our friends and all the kids (we ended up with six kids PLUS my own two) and spending time on a Skype call with Suzy to admire her growing baby belly.

C *is* for cookie (say it with me), that's good enough for me.

NOW it feels like Christmas

The first batch of cookie dough I make every year is always this recipe. Butter, flour, sugar and walnuts. A splash of vanilla. Simple and delicious.

I don't eat many cookies during the year but my Danish recipes come out every December. Margarine just WILL NOT DO. Real butter, unsalted, to make extra sweet cookies. The best part about this particular batch is that since it contains no egg, I can sneak over to the refrigerator and break some off. Nom nom nom.

This time last year my own personal atom bomb was creeping up on me. The day I received my cancer diagnosis I had other cookie dough started; it would go from fridge to freezer to garbage can over a period of about 2-3 weeks.

I feel a little bit overwhelmed by the thought of making cookies this year. I'm not sure why; maybe a little bit of it is the extra time and effort - I still get tired fairly easily. But I know that I'm also still feeling the echoes of last year's sucker punch.

I love NY

Dear Blog, I miss having time after school waiting for the kids to get off the bus, to post to you.

 

I'm extra busy what with a new Tim Holtz tag every day and a new level of Angry Birds open and photo assignments I am not keeping up with (but I am keeping all the emails). I mean, I am busy with Christmas errands. Yeah right. Although I did buy a beautiful bracelet for the woman who took care of me this year, shaving my head when the chemo kicked in, and then working with it as it grew back(gray). I got kind of choked up telling the sweet sales clerk who it was for and we had a nice moment because she has had BC issues too.

 

Monday was a quick trip to NYC chaperoning a field trip put together by my son's awesome choir teacher. I love Times Square. We got dropped off by our cowboy hat wearing bus driver at Bryant Park. The three kids my friend and were assigned to watch went ice skating briefly at Bryant Park. Then I put on Missy's skates (you're not really supposed to do that...oops.) My karma caught up with me quickly - I took two steps out onto the ice and fell right on my butt. It was pretty funny though. I skated a little bit after that, and got a few photos of me and the kids. I was pretty camerahappy all day. Can I just tell you I hate being on a bus with a kid's movie blaring? Kthanks.

 

We walked towards Times Square after we skated, and some guy named AJ (Calloway?) was filming a promo for Extra. He was not bad on the eyes, I must say. They were grabbing passerby's and so two of our kids are in the crowd around him, if you saw that bit. Something about Where all the stars come out, yada yada.  He said "Nobody does it better than we do" or something like that 50x because he kept laughing. A true TWSS fan, clearly.

 

The primary reason for the trip was the Radio City Music Hall show and if you've never seen it, put that in your bucket list. I loved the 3D part where Santa flies around Manhattan, and the part where the Rockettes "ride a Gray Line" bus around some of the best scenes in the city. But the toy soldier routine (where the cannon fires and they fall like a line of Dominoes) is my absolute favorite.

 

I love you, Manhattan, I will be back soon.

 

 

At least

Now I have something to look forward to when insomnia hits...

Well, I knew I was different...

Today I went for the results of my genetic testing. Good times. Insomnia and angst. Worrying about what I will do if I do have the mutation (and a greater chance of having ovarian/ uterine cancer).

Given my holiday track record (see: diagnosis of cancer two days before Christmas eve), when I had to wait out the thanksgiving holiday to get the test results I couldn't help but assume that I do in fact have that stupid gene mutation. It was starting to feel Deja vu to me... Going for tests alone, because I didn't want to ask someone to give up free time at such a busy point in the year, to accompany me.

Time dragged on and I found myself FINALLY waiting outside the doctor's office this morning. Sweating, and trying to unwind that familiar knot in my stomach.

I went in and waited a while amidst other patients. It was humbling; it always is. I always feel particularly guilty when I see an older person and wonder how badly chemo is kicking THEIR ass. Somehow I feel bad for getting through with a minimum of chaos along the way.

Finally someone brought me in the back to a conference room. I waited and waited some more and thought I might have to go find that folder myself before I I lost my mind.

At last the doctor appeared at the door - and pointed at me, said "I'll be right in," and LEFT AGAIN. She had the papers in her hand. Sweet monkey.

When she FINALLY came back a few minutes later it wasn't with Irish step dancing and "it's all good news" so I got very discouraged. But then she said "well, I don't have bad news, but we have things to discuss."

She explained to me that the lab didn't find the brca-1 mutation that is common in families with clusters of breast cancers. Or the brca-2 mutation. There was, however, an inconclusive finding of some other sort of mutation.

So it was "um, that's good news mostly, right?". And it is. I don't need to have a difficult, frightening conversation with my daughter now about whether she has a mutation known to correlate with breast cancer. She doesn't need to be tested.

But as for a final answer on what the other part means? No dice.

Somewhere out in the universe is someone else (ONE person in all of the people who have had genetic testing processed at the same lab) who has this same inconclusive other mutation, and so for now the two of us need to chill and hope that it doesn't turn up in other people and get linked down the road as a common factor in people who have some type of cancer.

So I guess I'm one in thousands, if not one in a million.

Insomnia

I should be sleeping. I wish I COULD be sleeping.

I do not think I have slept through the night more than a couple of times in the past year, for various reasons. Pain, steroids, and hot flashes - which apparently will continue forever. It sucks!

Not only do I feel very alone, it's frustrating to be tired, so very tired. And WANT to be sleeping. Not worrying about tests and bills and random things like car inspections going wrong costing me well over $500.

Thanks for the ride, 2010. I will be happy to turn the page to January.

By the way

I really can spell Tim Holtz. It's my iPhone that can't quite manage.

It's one of those days....

Sunday art

Things I am excited about...

Tim Holt's 12 tags of Christmas... If you like creating art projects with rubber stamps then I'm guessing you know who Tim is. It's that time of year again - can't wait to see the new tags every day and to try to win one of the daily prizes.

I will be taking another online photo class starting this week. Daily assignments = taking pictures daily which makes me happier all around the edges. See
http://www.bigpictureclasses.com/blog/ for more details about "picture the holidays".

I have TWO chances to win a very sweeeeet camera and could find out today or tomorrow. Fingers crossed!

A second helping of normal

It's been a wonderful couple of days. (what, Carly? You just complained about your entire day.)

It was calm and beautiful to be with my family and eat and eat a glorious plate of food without thinking about chemo and the various medicines I took to get through it. It was sweet bliss to just sit down after the meal and take a nap like your average American.

I could have done without the bra though. Those fuckers still hurt. Before I even left my mom's to go to my brother in law's I was in the bathroom trying to take it off without just taking off my dress (like any person with any common sense at all would do).

It was fun to gather with family and just be crazy Aunt Char again. (Somewhere there is a picture of me, one holiday I laid down on the floor and all three of the kids, mine plus my nephew, piled on top of me, in some sort of a crazy sandwich.)

Well, now I have a younger niece and nephew plus my nephew's stepbrother has a young child so I am an Aunt again and also a great Aunt. And I am a great, fabulous Aunt. My many services provided yesterday included a running commentary on Charlie Brown (look at Snoopy dog making popcorn!), letting the kids run my iphone battery down completely (all those games I buy like Spin Art go over pretty well with the five and under crowd) and even helping with Mandy's poopy pants (why do people rush to get their kids out of pullups? It's like some sort of pissing contest, if you will pardon the pun. )

I capped off my services by wrangling a three year old into showing me her Beauuuuutiful pjs... (oh my! Please put them on for me...) and reading Goodnight Moon three times, in a progressively flatter monotone... Hushhhhhhh.

I can't wait to be an Auntie again, and lucky for me, around May I will be.

Today I ran all of my stupid, redon-culous errands without needing to sit down to breathe and try to catch my strength. I'm gonna show Santa who's boss, and come Christmas day I have three new kids to pile on top of me. I think I'll put the two pictures side by side in one frame.

So

Given my previous post, it's a good night for this bottle of wine, right?

Three strikes - I'm out

SO, (like my photo taken yesterday?)

I'm kind of baffled how my day is going today.

I slept in - awesome. Then things have been on and off the rails ever since.

I edited photos and ordered my Christmas cards from Snapfish - yeah! I also ordered a canvas print of a picture I took at Cape Cod and converted to pastel. Hmmm. Wait. I didn't get the 25% off and free shipping credit that I should have. (They sent out an email last week, and then a correction saying "No, really, it's working now". Which is the only reason I noticed that it isn't. I emailed customer support and got back a credit of $6.14 and I think it should have been way more, but I'm so confused at this point I'll walk away. Primarily because the customer service emails are coming from people who are clearly in INDIA. Strike one.)

I went to get some Chamilla beads for my daughter because the little jewelry store I go to sent me a postcard with "buy three, get one free on black Friday." The woman who helped me had obviously NEVER TOUCHED those beads before. She had no idea which ones were which (the glass ones were on thin metal rods that set in a wooden frame. The whole thing looks like an abacus. There are pictures that are "sort of" behind the beads. But since the beads can slide all over the place it's kind of weird and hard to tell which bead is which, if you have no brain and can't tell a pink one from a blue one. )

So I picked out two I liked and she wrote that down (on a piece of lined school paper like my 8th grader uses for homework... wtf? ) and then she wrote down the two that need to be ordered (a gingerbread man and snowflake). She went in the back to talk to someone about how to order them for me. She addressed him by name and I figured out it was the owner's son, because he has his dad's name and that's the name of the store. So he asked her for the other two beads. She came out, looked at me, asked "where did the beads go?" and I looked at her, not understanding what she said, and she took the piece of paper and walked away. I then heard him say to her "If you leave them on the counter people will take them." Dude. You did not just accuse me of shoplifting. (One I don't steal stuff and two, walked in with a postcard with my name and address on it.... hello!!)

She came back out and asked the clerk helping the person next to me if that clerk had seen the beads and I said to her "You never took them off the rods." I was about to follow with "and if you'd like to search my purse you just go right ahead" but I bit my tongue. She said "Ohhhh" in a really confused voice and said "are you upset? I apologize."

I should mention this was not some 18 year old who I could forgive for flaking a little on Black Friday. She was about my Mom's age. So of course I still have to forgive her, but wait! the story isn't over yet.

I handed over my credit card and she took it back to him; he tried to charge me for All. Four. Beads. I said "That's not right. It should be $35 + $35 + 27 and that's not $134." Fcker... her response was "Ohhh", again.

Now, anywhere you go they usually run your card and hand it back to you with your copy of the receipt, and then also hand you the piece you need to sign at the same time. She handed me two pieces of paper. No card.

I said "I need my card back please." and from the back I heard him say "I need that slip signed." Unfucking believeable, and strike two.

When I get my beads, I will be explaining to his mother, who still runs the store but was nowhere to be seen, exactly WHY they will never see me again. I just want what I went there to purchase.

To cap off my day, I got my car inspected and It! Failed! I need four new tires!!! But when I get them I can go back to the same place and they will reinspect my car for free! I win??

Yeah, I know. I'm out.

The envelope, please

My test results are in... But I can't have them.

The doctor who does genetic testing is only in the office on Tuesday and Thursday.

She has already explained to me that they ALWAYS make patients come in to discuss the results.

I watched her draw my family tree. MY family. Circles for each female, and squares. Neatly filled in for those who are gone, their cause of death noted carefully underneath.

The simple tube of blood, shipped away - Jersey? I can't remember. I will know when I get the bill, which could apparently be hundreds of dollars. I can't wait for THAT envelope either. Not.

But I am trying very hard to convince myself that I will NOT have another December holiday where tests and results drown out laughter and celebrations.

News is just news, and it's just a piece of paper in a folder on someone's desk but it's hard for me not to tilt my head and listen for a ticking sound.

Sunday art

I recently got a new pc and I FINALLY have photoshop (cue fireworks...) --I have already used it to edit out the closed eyes of one of my children (from a group photo of five cousins plus Nana and Papa).

This is a photo I took near the start of the Erie Canal; I pass these every morning on my way to work. I didn't have a camera or time to stop the morning the mist and fog swirled around them, but yesterday the sun made a pretty nice mirror out of the canal.

Happy

So, I remembered I have a blog today. Oops, sorry.

I feel more like me again. I was just reading my posts for January and feeling SO THANKFUL to be here in November.

I have a hairdo again. I won't go on and on about it. But yesterday in the ladies room I saw the lady who comforted me the day it was 90* and I didn't wear my wig at work (I wore my favorite dragonfly bandanna) and she loved my hair, which is a nice shade of ash blonde now and has a shape sweetly unlike a helmet of hair all equal in length.

I took my daughter to the mall for a manicure today and saw my assistant guardian angel. (You can read my original post about her at
http://goingon40.blogspot.com/2009/12/fine-spiculated-mess.html - in my memory banks, her index name is Happy.)

It was very busy there today so Ty, who I thought was just a manager, did my nails and Oy, he really does a brisk leg massage. Ow. Stop punching my legs dude! On second thought, he really loosened up the foot I have flirting with plantar fasciitis.

While he was doing my hand massage, I closed my eyes for a minute and relaxed. Happy came over an said "He bad man" in a playful tone to me... So then I laughed and he said "is good, right ? good, she loco" and then I had to say "do you remember me? I met you in December, the day I found out I had cancer" and she did... I saw recognition pass over her face... She began talking about power, and strong, and said my hair came back so good, so I really do think she remembers and understands, even though my ability to speak Vietnamese really sucks.

So yeah, I hugged her. Because I am at peace with being Dorky, and that one little encouragement of "happy happy - fight!" meant so much to me. And my daughter's reaction "is that her??" was not unlike what you would hope for when pointing out someone who threw you a life preserver when you needed it most.

Hoop there it is

I got some exciting news yesterday.

My college roommate walked with me at our local Susan B Komen run /walk last month. Her mom is also a breast cancer survivor and walked with us.

They are affiliated with a local group that provides a number of programs for women diagnosed with breast cancer. One event is an awareness night at women's basketball game for Siena, a local college that runs a very popular basketball program around here.

From what I understand I am one of a group of women who will be honored at this year's event, and I get escorted out onto the middle of the arena floor during halftime or before the game or by a team member or something equally fun. And prizes! I love prizes. Apparently there are goodie baskets, but I'd be happy with even just the awesomeness of standing in the center of a basketball court and having an arena full of people cheering for us.

Exciting and definitely something to look forward to -

Let's just hope I don't trip walking out onto the court!

Apple

Today I get my new bedroom rug... The one I originally picked to match the paint I originally picked...

This of course means that my bedroom had to be emptied AGAIN last night. As in, while I was also committed to babysitting my niece and nephew. Ooopsie.

So after listening to "knock knock....apple!" about 500 times (really, that's the whole joke, he is three), giving them extra cookies even though they didn't even come close to cleaning their plates, and letting them play Cut the Rope and CakeDoodle, we sang christmas carols and I got them sound asleep by 8:15; I then slipped out of the house quietly. (Kidding, but only about that very last piece. I did actually wait for their parents. )

I came home and emptied my closet. Because to carpet wall to wall they have to be able to lift the wire 'california' shelving... Literally every room in the house has some of my clothes plopped somewhere, between getting dressers out if the way and just things already stashed in the kids' closets (like black tie dresses from long ago...)

This is making me very twitchy. Where to start? How much to get rid of? Do I chuck stuff that's still a size or two small or hope that the running gets me there, when it might only keep me at the weight I am now? Pointless debate unless your entire trousseau is on YOUR couch.

We won't talk about the fact that I had intended to buy a new bedroom set but haven't managed to go find one yet.. Because then I would have to talk about emptying most of the room again and I might have to lie down on my new rug, or lay down, I don't even know, and sob.

Knock knock ...(see post title)

The dragon in the cave

With apologies to the fairytales of my grandfather's grandfather....

I am scheduled to go for genetic testing this week to see if I have issues with mutated genes that go by the lovely monikers of BRCA1 and 2. Let's call them The Dragons.

This fair maiden has been feeling rather lost in the woods. First a hunter stabbed her, and then she had to eat four poisoned apples. Then I -well, SHE- felt the heat of a large fire. It burned and burned, for weeks.

The woods have now been quiet for three months. New signs of life have appeared. Eyelashes have grown back and my nails no longer have ridged rings like tree trunks, one for each poisoned apple.

NOW they tell me that there may be dragons in the woods. I'd heard the legends, of course, but forgot them in the midst of the apples and the fires.

If I have these gene mutations I get to worry not only about more breast cancer but also ovarian cancer... Not just for me but also for my daughter and sister... I don't really understand all of this yet. My oncologist talked to me about making the appointment a week or two ago and I set one up for this week. I haven't watched the informational video yet, but I will need to do that soon.

Some people don't want to be tested. I imagine they know there might be a dragon in the cave, but they'd rather not find out. They will just walk quietly past the entrance to the cave, and hope that nothing lurks therein.

I am not quiet, and if the dragon is there, it's there, and might wander out of the cave at any time to try to take a bite out of me. So I will need to aim my flashlight right into each and every cave and see if a pair of smoke- irritated eyes should happen to glow back at me.

If so, I will call upon my faithful knights to watch over me, and slay the dragon if he dares to try to sprinkle me with salt.

But wouldn't it be nice to find out that the cave is empty?

Oh and by the way...

The picture in my previous post might make more sense if you've seen this one...

A short note I can't send

Dear grouchy lady at my lunch table,

Chill. Out.

I know you had breast cancer two years ago and you are on tamoxifen now, but please shaddap. Because all you do is predict gloom and that my hotflashes will get worse (they're getting better now that I'm running more) and that I will gain weight (see previous comment).

You are the one who told me during chemo "oh wait till you have radiation..." and I didn't appreciate the ominous tone then, either. By the way? Radiation is easier than chemo.

I have only been on it three months but my doctor says so far so good, and I'm hoping it stays this way.

I realize you might be having a harder time with it a because you're ten years older than me. So... I guess my point is that I'm writing this note because I don't want to tell you to shaddap for reals. (But please shut up. Like that song Baby danced to on DWTS this week. shutup shutup shutup!)

Have a nice weekend! See you Monday (big grin).

C vs C

Last night I went to a Coaches vs. Cancer fundraiser. It was great food, a few old friends. I amused myself by chatting with an old friend for ten minutes and not mentioning at all that I have been treated for cancer this year. Mostly I found it amusing that people just can't tell anymore when they meet me, that something was up medically for me. Wait until HE gets the Christmas letter. I'm sure I will get a call from his wife.

The Shell family was honored with the Fighting Spirit Award .... the dad is a local coach, and had a lot of support from other area coaches when HE had cancer, and their son Jake has just recently had cancer as well and just got a sweeeeet treehouse from Make a Wish.

You can read about Jake's treehouse here or you can read about his wonderful Mom here .

Matt (the dad) gave a speech and talked about a coach and mentor of his who has died within the past week. He also talked about his own cancer battle and his son's. One other idea that he mentioned was a quote and a philosophy that boils down to "Enjoy the sunshine."

I did just that yesterday. I squeezed in a brief run after work / before going to the benefit. It made us a few minutes late but it was more or less a cocktail hour -- I had some chinese food, dumplings and ribs and so on, and 3 or four amazeballs creampuffs. Yum. Healthy dinner, I know. But back to the run (I am rambling this morning and NEED TO GET TO WORK.... sigh) I was cold, and the new level of couch to 5k I am at is HARD, because this girl can still not run for 3 minutes straight, especially up the hilly streets in my 'hood, but really enjoyed it anyway, because there was definitely sunshine.

Your mileage may vary

Where I went today....

Up the road to work, NOT stopping to take a picture of the mist swirling around the canal gates. Already too late for work. Dammit, Janet.

Stopping at Dunkin for a bagel. Honestly guys. Starbucks never fucks up my tea - and I get a vanilla chai latte there. I'm still trying for "large hot tea, sweetened". I have been given coffee, tea with cream, and other nonsense... as well as the wrong kind of bagel, cream cheese instead of egg and cheese... WTF ? Listen and pay attention.

Lunch break - bank A, post office, gift store (needed a gift certificate for an event we are going to this sunday, but got myself some goodies for my birthday... Spent extra so that Mr will take the hint next year to do his OWN shopping...purse, pandora beads, candy....) another bank, got lunch, and made it back to work in 65 minutes.

Then after work down to Macy's looking for a $20 coat from their ad which all the clerks denied existed, so I chalked it up to chemo brain. Went to Sephora to collect a little promo birthday gift and of COURSE some cute nail polish (dear Essie, you make better products.... I only buy Sephora because it's RIGHT THERE).

Looked in bookstore, no fun without anyone to discuss books with, also could not find a certain book I was looking for. (LOST encyclopedia)

Went to another mall to look at jc penny for mystery coat because B thought maybe it was there. Again with the rude clerks saying "a coat for $20? No" (found ad at home later. It was Macy's, bitches. But I got a nicer coat at penney's. )

Beat feet on home, we had to go ove.r to a (Giffey's )chicken BBQ at church No sauce? WTF number two for the day; and on the way home I voted. HATE ny's new paper ballots, WTF number 3.

Then I remembered I had to go over to copy 250 wreath order forms and even more lunch menus and stuff teacher mailboxes. Back out the door I went.

Sadly I did not remember to spend an hour on something I brought home from work. Rut roh.

I am tired. I have not done this much in one day in literally about a year. Hopefully I will sleep through the night, which is another thing I haven't done in a long long time.

Adios.

All done

The Gene Simmons one was done by my son. I have to clean them up a bit tomorrow... Um, later today...

Spring cleaning, anyone?

My new pc is here. If you're looking for me, I'll be on the couch, sneezing.

Bulls ...eye

So I was at Target today, and I walked up to my sister in law, and she didn't recognize me. My sister in law. The one I like best, and I see at least once every week or two normally.

It would be SO funny if it wasn't just a little bit discouraging.

I am TIRED of people saying "Oh, I (he, she...) didn't recognize you!" - it has happened several times in the past month, what with two school open houses, two PTO meetings, a school band concert, and yesterday seeing a neighbor whose husband died in July (and I didn't even know...because I was sick and exhausted then) . Let's not forget my niece and nephew hiding behind their parents because they were afraid of me. I mean, I'm trying, really, to forget that but...

My hair is so very different now. I was told a couple of weeks ago that I should keep it in perspective. It really hurt, because I think I've done a pretty damn good job not feeling sorry for myself over the past year and being VERY grateful that I skidded through this mess with a good prognosis. I was pretty verbal about that on facebook when my treatment was winding down, to the point that I was afraid I might get annoying with it.

I just want to look like I used to look, in part to feel like ME again, and in part so that I don't have to explain the past year to EVERY PERSON I RUN INTO. Because truly, I don't want to go on and on and elicit sympathy. I want NOT think about cancer, or how short / gray/ curly / red/ orange (ugh) / dark brown my hair is.... and I want to make plans for the future, the holidays, the spring time, and so on and so on. And I want to be supportive of my friends and neighbors who had someone they love die, because do you really think I don't care about people dying, internet? Please, tell me no.

Anyone who has never had the experience of looking in a mirror and not recognizing the face that looks back should think twice about how that might feel, and how it feels to be reminded again and again. The kindest thing you can say to a woman who's lost her hair and looks completely different is "You look great." Then stop there, and be quiet.

To be clear

The trees didn't stay IN my car. I have a skylight in my car, but I also have one over my desk at work.

It comes in handy on dark mornings. One of the droids does not like the ceiling light on - early in the morning I lierally walk through shadows to my desk.

Last week I asked for a desk lamp. When everyone heard that yes, the company will buy us lamps, guess who also wanted one??

At least I think so

I'm probably the only girl driving to work with trees in her car. They're not looking good and I hope some skylight time will help.

I have Sugarland's "Incredible machine" on loop. What is she saying? Holler? Call it? Someone please tell me.

I have a dr appointment tomorrow. Things should go smoothly. I don't feel 100% by any stretch(haha, like my joke about how I can't take off my jacket without saying "ouch" because my arm gets pulled too far back?) but I feel better than in August.

Dear autumn

I love the leaves, but not so much when they decay and my allergies kick in - it's just about time. Soon I will have a full blown sinus infection. Yipee!

Sunday art ?

The only thing I have managed to "create" today is this pie, which my friend Mrs. Smith started up for me. I added some cinnamon and sugar to the crumb topping and of COURSE I have ice cream waiting. (Of course I also got outside for a good 45 minute walk today!)

I'm currently watching Alex Guarnaschelli make all sorts of desserts. Mmmmm, bananas foster.

Don't tell me if I'm wrong

...but I think puzzles and games are an important part of recovering from chemo brain

(which still sneaks up on me from time to time...last month saw someone from The Bank, he was part of the division I was in, ... when he came to interview at my new company I couldn't think of his name... Oy vey... Yesterday I heard he got the job.

Exhibit 2: I told my boss my new pc will have 6MB of memory... D'oh! He kindly said 'can that run windows?')

Anyway... Playing Cut the Rope is bound to fix all of my cognitive issues right?? I started playing yesterday... So by the end of next week I should be all set ?

Falling

I have a nice drive to work now and I can watch various trees show off their colors. I drive a bit slower since I'm not on the highway, and the sun rises behind me and lights up various trees along my way. Beautiful.  I hate to see them get bare though...

I went running the other night. It might be my last outdoor run for a while  I tried once in August, and felt like crap for a few days, so I thought I should wait for a while. I didn't feel like trying again until this Wednesday when I took advantage of 60* weather. 

 I have been stewing over something I really don't understand.  So I really wanted to run to clear my head and loosen up all of the tight muscles in my chest and underarms- the incisions I had are making themselves known  now that I am trying to get back to "normal" and do some fall cleaning and so on. 

I have an app that leads you through the Couch to 5K program. (The whole to5K part makes me think of Y2K, and I can't shake that association.) The idea is to combine periods of walking and running and gradually run more and more during the total workout. The nice thing about this app is that I can put songs into a playlist, and of course it manages the "run now" / "walk now" part.

When the voice told me I was halfway through my workout I was pleasantly surprised to find that I didn't feel like falling down, and I no longer felt like my brain was going to melt from confusion and stress.

So... progress

Fall flowers

Love mums. Love friends who bring me mums...

A joyful noise

There was a moment during the party when everyone was (in the kitchen, of course) talking and laughing and sharing all the food everyone brought. It was LOUD. I could barely hear myself think.

Somehow through the blur of it all, it registered in me, to remember that instant. I was SO very happy. It was such a pleasant contrast to the long quiet lonely days of lying on my couch not eating.

We had plenty of wine and plenty of people and chocolate desserts and white chocolate fudge which I really DID hide from everyone else. :)

The pictures that my sweet little friend N took are grainy and scattered and from a nine year old's height, but they are still pretty much perfect. Anyway, I'll remember.

No trombones

Today marks 76 days since August first, and 76 days UNTIL New Years Eve. (I can't read "76" without thinking of the old song "76 Trombones". What is up with THAT? Now it's stuck in my head...)

Time is speeding up again; no more long dreary days where I can really sleep and don't feel like eating.

Yesterday I made plans for where we will spend Thanksgiving and Christmas. Happily for me (and my sad, sorry wallet) my hosting workload should not be as extensive as last year. Yipee!!

A thank you celebration

Many people brought meals to my family while I was sick. We are very active in our school and parish and as much as I grumble about all of the time spent volunteering and NOT doing my own spring/fall cleaning, there are dozens of good people who took care of us and got us through this year. Chicken, lots of chicken, and lasagnas and mac and cheese and cookies and brownies... I could go on and on. There is nothing so humbly rewarding as having a dear friend make sure you get a warm meal when you really need one. I don't think I ever truly understood that until this year.

It also bears mentioning that people lovingly took my children overnight when I had surgeries, took them to school concerts and baseball practice and fun places while I was too sick from my chemo to do the things I normally do, and even rushed to comfort them when I got carted away in an ambulance that one time.

We are having a little party at my house this weekend to say thank you to our friends, and sort of celebrate the end of the most active phase of my treatments. I still have doctor visits and tests sprinkled all through my future, but HOPEFULLY the worst is over.

I still don't feel quite like me... one thing I have noticed is the weakness in my upper body, from four beautiful incisions and radiation and all of the necessary healing that goes with all of that, and that things like lifting my hands over my head or lifting a case of soda will bring me pain. The random nosebleeds come and go along with the quality of my memory and ability to focus on a challenging task on any given day. And the other day I was making apple crisp, with nice fresh apples from the orchard, and I was slicing and peeling and feeling all zen Mother Earth and happy. Then I felt a POP in the back of my hand. I looked at my hand, thinking, "I don't REMEMBER banging that on anything just now" and watched a bruise spread 2" wide before my brains kicked in and I iced the darn thing. Fck. Seriously? It will take two weeks to fade. Nice joke, universe.

At any rate I have been really looking forward to this party, because it is another step of closure on the big bad scary part. And while I can't have everyone there that I really want to, (every one of the many people who helped me, that is... because people have lives and commitments and are far away and things get crazy... ) I will have most of them, and we will be celebrating.

The funniest part, for me, is that I planned this so that I could make a nice spread of appetizers and some ziti and meatballs and carrot cake, and feed all of my beloved friends, and without fail they have called to RSVP and asked,

"What can I bring?"

Zombie pumpkins

These are some contenders for this year's pumpkin. (Thanks Marco,for the clown suggestion; the two at lower left are my favorites)

My son is going to try one this year. He's leaning toward gene Simmons, who didn't make it into this snapshot.

He also tells me that the thugs, um, vandals, ....kids! I mean KIDS who come by every year look for my pumpkins now... Heh.

Visit www.zombiepumpkins.com and buy 20 patterns for $5 via paypal. Tell them Carly sent you. They won't have any idea who I am, but tell them anyway :::snicker:::

Boo hoo

Ugh!
I hate Halloween. And it's almost here. But I am going to be cheerful about it this year, dammit... Drink hard cider (:::ahem:::), and give candy to dozens of kids I've never seen before,.... And carve a wicked pumpkin. These are little clips from my blog in '07, '08, and '09. Yes, I carved those. Patterns are my friend. Any suggestions / requests for this year?

Blue

Yesterday my son and his friend helped Mr paint my bedroom. It's blue; but I figured out today they had used the wrong blue (it was too dark and didn't go with the sample of rug I picked).

I was willing to just pick a new rug because it was a nice blue; it just didn't match the rug (which wasn't ordered yet) - but Mr C went and grabbed a gallon of the right color and redid it this afternoon. Everything was all torn apart anyway... It didn't take long to cover the "wrong" blue, which looked VERY purple next to the "right" blue.

The store clerk said that when we got the paint (back in July) they probably looked at my paint chip (which wasn't from their store) and picked something they had that was "close". So because I was still sick I had the wrong samples, wasn't there at the store, didn't notice, etc.

So D had slept over at his friend's after painting and we decided to mess with them.

We told them the paint had dried and changed color and asked them what they did wrong; we said that we wanted them to redo it tonight. We let them stew for about five minutes. It was almost worth all the trouble, to see their reactions - but still too much work! I hate painting !!

Sunday art

At 10:10 on 10/10/10 I was laughing at Stanley's new reading glasses, which open at the bridge of his nose and close via a magnet. (He likes to walk up to people and grab the outer part of the glasses and tug them open just to see people react as they split apart )

I needed a laugh because it's been a bumpy few days. I went to get my hair colored back to my favorite brown with a hint of red and ended up with hair that was VERY orange. Ronald McDonald was asking me to make him lunch. Post-chemo hair is wonky and doesn't always cooperate well with cosmetology.

I got it "fixed" but it's very dark. Not the "me" I am trying to find my way back to. Some people won't / don't understand I guess, but I have been longing to look at myself in a mirror and see "myself" and since my hair fell out I feel like I haven't been able to do that. I know my issues are small in light of - for instance - what Stephanie Nielsen is going through, but it is one more frustration on the path (surgery done, almost ready to go back to work, then my incision reopened. Chemo almost done, then I got a mouth infection. Radiation done, then I got a skin infection. Hair finally is almost a normal length, and I turn it into clown hair wanting this all to be BEHIND ME. Aaaaagh! )

So I ate TWO cider donuts today. Yummy.

Not a ribbon

I thought this was pretty, so I ordered one...I saw it on Twitter. It's not so pink- ribbon -ish, but it will make people that are merely casual acquaintances nod and leave me alone about the whole pink for October thing. Ya know?

Lastly, I freeze a little too often at work and this might help. I love wrapping up in a big cute scarf. (Yes, I spent a few years at my last job sitting at my desk bundled up in scarfs and giant pashmina: shawls.)

A little frayed around the edges

(Photo is mine from last summer, edited with photostudio app for iPhone )

I am trying to work a little bit more this week. I usually work around 30 hours and alternate between telling myself I'm doing fine or that maybe I'm coasting too much.

Who doesn't like to roll over when the alarm goes off and mumble "I'll get up in an hour"? That's what I've been doing the last month or so, getting the rest of the house up for "get ready for school".

I need to start getting up with them and getting to work on time (8:00 is when I would LIKE to land) ... We have SO much work pending right now that I could make overtime this week, if I had the endurance to work that many hours

But today I felt like everyone was tripping over me this morning at home and I was SO TIRED after lunch - literally almost nodding off at one point. So we're having a bumpy start but hopefully I will sort it out.

And with that, it's lights out time!

I'm a survivor

Picked up my shirt for tomorrow's walk / run... I actually got two, because I registered for the 5k AND the family walk with my kids. The volunteer shook her head at me and more or less said "no... Just register for the run next time". Oopsie. Oh well. That's just like me... But its for a good cause, and so on.

I got a little emotional when I saw the shirt, and on the way back to my car. I am happy to be on this side of all of my treatments but I'm in an odd mood about the shirt. I'm not sure I can wear it. (glitter aside. Ya know?)

I am actually wishing I could go away for a weekend all by myself and let a whole bunch of emotions out with anybody I know around, but that is a fleeting wish now and then, and it doesn't really mesh with the reality of my day to day life. So I guess I'll have to blog it out, a little at a time. Sorry, Internets.

(For the record, this picture IS in my car but this post was not typed while I drove. Because I didn't kick cancer's ass just to die texting in my car.)

October

Being breast cancer awareness month and all, I have to be honest. I have a love / hate thing with the pink ribbon.

Poly is nodding already but for the rest of you, I will try to explain my feelings. (I don't claim to speak for her, or anyone else who has had breast cancer. Your mileage may vary)

The ribbon is good because it is kind people with good hearts trying to reach fools like me who never dreamed they would ever have to worry about cancer, and educate us, and remind us to get the checkups we need even when we are unemployed and depressed.

It's people who want to encourage me to fight, giving me scarves and hats and so on... All with the ribbon- many kind gifts of loving support.

But the ribbon is a trigger reminder of all things unpleasantly included in the package deal that I never wanted and oh look, there's "why me" and a bunch of other things that well up. Fear and pain and needles and medicines and being the only one awake in the house at 4:12 a.m.

It's a reminder that my life is forever changed. It's something I'll always have to have in the back of my mind. Watch for recurrence. Take the drugs. Keep the followup appointments. I basically lost eight months out of my life to a disfiguring disease, and sometimes it's hard not to resent the ribbon as a tangible focal point for al of those issues.

People don't always recognize me, as I've blogged about, and some days I still don't feel quite like me. And now and then I brood while I palpate the dents and gaps and tattoo marks left behind. It's over in most people's minds, and I try not to linger in that part of my past, but I haven't quite escaped.

But I come back to thinking about the generosity of so many people in my life, and I am immensely grateful for my family and friends, as well as for the dozens of medical professionals I have encountered in the past year. Nothing underscores that quite as nicely as the viral video going around (just search for Pink Glove Dance, on YouTube ) - dozens of people just like the ones who took care of me... I love it and it makes me cry all at the same time.

My son is organizing a charity baseball game with his eighth grade class and I have to go there and be brave and try not to cry. I am proud, very very proud of them, but nervous about going.

It's October, and pink ribbon time.